February 28th

Hana is much like her normal self today. She still may be overtired from lack of sleep (two babies in our room cried most of the night) but she seems to have an easier time sleeping through the noise than me. I do think she is really bored with this hospital bed.
Today’s plan is to supplement sodium because it is still low. The attending doctor yesterday was opposed to this so now it makes me nervous that today’s attending doctor wants to start it. They are decreasing her Ativan by 10%. They are starting her on a beta blocker, carvedilol. They are keeping everything else the same as yesterday. She did have a high heart rate/arrhythmia but since it went way down when she is resting, they don’t seem terribly concerned. She didn’t really gain any weight yesterday and we need her to gain it, she’s lost about a pound since all this started (she only weighed 15 pounds). She also needs to prove she can gain weight before being discharged. Yesterday the occupational therapist came by and she made sure Hana could take a bottle and swallow safely. So, today we will again give her a 1oz bottle (yes, she took the bottle, no problem!). They drew blood for genetic testing, we won’t have results for two months.

We got a cottage yesterday here in Palo Alto. That will help Paul do work remotely and avoid trips all the way into the city. It’s a beautiful space, we are very lucky! I started opening more care packages and cards and started crying – a lot, so I had to stop. More on this later…