Today I got a lot of help! At one point there were three people here! We were really able to make a lot of progress and I was able to start opening a backlog of mail. We also got started on a very cool project for Hana that I hope to share tomorrow. Lots of packages arrived. A neighbor and friend walked Poppy. I had a good night’s sleep (relatively speaking, I was still up six times in the night) so I felt pretty good. Hana had a good day too. She did not vomit, although she seemed a little gaggy at the end of the day. We have our medicine area all set up and are getting organized. A friend, who is also a pharmacist, came over to give me pointers on getting Hana’s medications drawn up and ready. Tomorrow we meet with an infant feeding specialist who is also a speech pathologist.
Tonight, after Hana was asleep, I sat in the glider in her room and watched her. I felt sad. Earlier, I thought she was breathing fast, so I counted the number of times her chest rose and fell in one minute – it was 41 times, which I guess is still normal, even for resting. She looks so normal, she acts so normal, but I worry about the things that may be going on that I don’t understand well enough. That’s how it was before. She was in such a fragile state and I didn’t know, well, I didn’t know how bad it was. But she seems so good, when will that be enough to stop the worry?