Hana still has a fever. It’s come down with Tylenol but then it creeps back up. Hana’s respiration rate has been rather fast, her heart rate a little higher and her blood pressure has been low. For her blood pressure they are removing the clonidine patch and holding her carvedilol and enalapril for several hours.
Now the question is why she has a fever. It is a diagnosis of exclusion by checking everything they can think of. Her urine culture hasn’t started growing bacteria, they haven’t heard about an infected PICC line, they will do a CT scan today to check her Berlin Heart for abscesses, they are checking for skin break down or anything going on in her ears, mouth, diaper area. They are contemplating a drug fever. They will do an echocardiogram to check the right side of her heart and do a BNP test (blood drawl) to check her heart failure. It could be, although unlikely, a heart failure fever.
This makes me want to cry – a lot. It feels very scary. There is so much that is unknown, but I guess that is how life can be. I’m glad my mom is still here. Paul and I both agree that we don’t know what we would do without her.
Thank you to everyone! I don’t always get a chance to respond every time someone reaches out but we are very appreciative.
Hana's Heart 
It’s totally understandable why you’re feeling this way. I can’t imagine what you and Paul are going through but your little girl shows so much resilience and strength, I have confidence the medical team will figure it out and get her back on track. We are all here cheering you on! Hugs to Hana. ❤️
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I hope you allow yourself to cry. I feel so grateful that your Mom is able to be with you. May the doctors and Hana’s own body intelligence find a way to lessen her fever and everything else that she needs.
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Bless you little Hana, may you be surrounded and filled with light and strength and healing. You are so much in my prayers.
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Oh please Lord send a miracle 🙏🏻🙏🏻please send healing to Hana please Lord 🙏🏻praying and thinking of all of you and dear sweet Hana. I feel sad and scared and still have faith that prayers will be answered. Send strength and healing. 🙏🏻🙏🏻🙏🏻
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Pat and I are sending all of you a whole lot of Love and Hugs.
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Extra prayers for Hana tonight. Of course your mom wants to be there. Just like you know. That’s what mom’s do. Walk forward in Faith. I have been telling myself this mantra daily for my own personal struggles, which in no way compare to yours, but it has helped me. I just tell God. Ok, I will take this new challenge and move forward. But I will Not lose my faith. He has answered positively every time.
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Praying for you all. This has to be terrifying. You have amazing strength for Hana. Must be why she is such a fighter. Hoping you guys get some definitive answers.
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