As I’m writing this, Hana is four hours post-extubation. That first 4-6 hours are the critical ones where you want to make sure they can handle it. Hana did beautifully. Everything was looking great. The nurse set us up so we could hold her (there is a spaghetti mess of wires and tubes). We haven’t held Hana in eleven days!
But soon after, Hana’s withdrawal symptoms started. Hana chewed through a lot of drugs used to sedate her while intubated. Then they shut them off or reduced them for extubation and this can cause painful drug withdrawal. They gave her morphine. Then the fellow came and gave her ketamine. Then they increased her Ativan. They are also going to start risperidone. Hana has been thrashing and bucking in our arms. She’s been letting out her raspy weak cry. She disconnected her medline and her oxygen. She scratched her face. She doesn’t want her pacifier anymore. It’s hard to watch.
Hopefully this doesn’t last too long! Last time it was really painful and hard to watch. But we are greatful that the extubation has gone well. I haven’t had a chance to talk to Hana’s heart failure/transplant cardiologist about what a more dilated heart and collapsed lung means for Hana. Although he was there for rounds today, he left before they were over, I suspect that there was a patient getting a transplant today. First we just needed to see how she did without the breathing tube! Hopefully tomorrow we can get more answers!
It’s been a great, yet nerve wracking day. Thank you for the great outpouring of love and support. It has really meant so much to us!