Another Good Day

Today was another good day. Hana is still a bit sleepy and her hematocrit was low (19) so they did a blood transfusion. That perked her up a bit in the afternoon but her overall energy is still low, which I think is still fine at this point. They gave her albumin today too. They are hoping to get Hana off the 1/4 L of oxygen she is still getting but so far her O2 level starts to go down sometimes without it.

They added a 1/4 clonidine patch to hopefully help her wean faster off her last drip – the dexmedetomidine. They didn’t turn it down until 3:30 in the afternoon, so it had been almost 30 hours since the last time they turned it down by 10%. I noticed that the gagging and retching did not appear today like it has been the last few days. Maybe it’s been withdrawal causing the gagging.

I like hearing the fellows come up with their plan and then hearing the rest of the team explain why something is or isn’t a good decision. Every once in a while I know something the fellow doesn’t know and I worry that either they haven’t spent enough time in the CVICU or I’ve spent too much time in the CVICU.

Today’s highlight was holding Hana for a while and then getting on the floor with her again for some play.

  
  

8 thoughts on “Another Good Day

  1. Very cool!!!! Thank you for the video. It’s wonderful to see her live! So glad today was another good day. ❤️💜❤️

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  2. What a sweet voice! Thank you for sharing the video! May the good days continue to out number the bad! Thoughts and prayers continue to be with you!

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  3. We can’t think of a more beautiful picture then to see Hanna sitting in her mom’s lap. How wonderful to see her up and playing a little. We pray that Christmas and the New Year brings the miracle you are waiting for. Marilyn and Floyd Forman

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  4. Hana looks great in this pic! She’s going to be ready when that new heart is!!! ❤️✌🏼️🙏🏻 Auntie Dana

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