A Cranky Day

Things are progressing here, we have nothing to complain about! Hana’s blood pressure has been high, something we are definitely not used to. They started her on a drug to help bring the blood pressure down. It is a very small dose and she may not need to be on it forever. Other than a leaky IV (I think it’s fixed) Hana has been cranky but otherwise doing very, very well.

Balancing meds will continue. We have to learn all over again! Two meds must be handled with gloves and two will need to be crushed every day. The rest are pretty straightforward, well they are if you are used to a lot of meds, which we are.

We continued our transplant education today, it’s a lot of information. Paul and I both got to hold Hana, it was great! Hana may move out onto the floor tomorrow, if they have a room available. After a week or so out on the floor, then we get to move to the Ronald McDonald House for three months. After that, we get to go home! One day at a time though. I am so grateful for today!!!

Okay that’s all I have now, I’m falling asleep writing this!

8 thoughts on “A Cranky Day

  1. So happy for all the holding and snuggling, good for all of you. And those legs – so long! She just keeps growing. ♡♡♡

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  2. Kathleen and Paul,
    It is just so beautiful to see sweet Hana healing and getting closer to going home every day. I am so moved by your attentive and loving care and understanding of her. Your sweet family, and the excellent doctors and nurses and hospital team – the care and dedication they show – really comes through too. Thank you for sharing this incredible time in your lives with us all. What a wonderful family you are. My continued prayers are with you!
    Jeffie

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  3. We have so much love for Hana and mom and dad ♥️♥️🙏🏻peace and healing wash over you 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

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  4. I have been keeping up with Hana’s progress. I am in amazement that she is doing so well. She is a very strong little girl. I wish you many more smooth days ahead. . my prayers are with you and Hana. ☺

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  5. I am so happy that she is doing so well. I always check for updates while cuddling with my baby. Best wishes Hana and family!

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