Blood Pressure

This will be quick because it’s been a late night. Hana’s blood pressure machine, a fancy loaner from the hospital, was measuring her blood pressure very high, repeatedly. High, like 143/99 which is very high for a kid Hana’s age. At first, it was only giving me one number, which I assumed was the systolic pressure (top number). Then we started getting the high readings. I turned the machine on and off, switched the cuff from leg to leg and arm to arm. I swear when it was measuring on her arm that her hand was turning purple. So, then I had to call the on-call cardiology fellow at the hospital and wait. When I rechecked it about 45 minutes later, it was giving a blood pressure that I would expect. But all of this made for a late night of staying up and waiting.

Hana is doing great. We had a clinic appointment today with her primary heart transplant cardiologist. They decided to double her dose of blood pressure medication (and this is before all the crazy blood pressure readings) because her blood pressure has been creeping up a bit. The cardiologist also explained that he had been studying her donor’s antibodies for closely and he rates the match with Hana as a 3 out of 10. This sounds really low but he said most patients get a 0 out of 10 or maybe just a 1. I didn’t ask a lot of questions about this because it sounded good to me and I think even the other heart transplant cardiologists don’t quite fully understand this subject of matching and antibodies at this very specific detailed level.

If you would like to order Hana cards otherwise known as The Gift, they are now available! 

http://eugeniamancinihoran.bigcartel.com/product/fundraising-event-the-hana-card-pre-order-only-and-only-until-sunday-6-26

They are only available until June 26th! 

The regular print is still available:

http://eugeniamancinihoran.bigcartel.com/product/giclee-limited-edition-print-of-the-gift-a-tribute-to-hana-yago

And the print of Let Go still has a couple of prints available:

http://eugeniamancinihoran.bigcartel.com/product/let-go-new-large-sized-limited-edition-of-10-for-hana

Support donating life by ordering a print or some cards, the majority of the price is going to Donate Life America!

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2 thoughts on “Blood Pressure

  1. Have them give you new cuffs for the blood pressure machine. They wear out frequently. You could always go “old school” and use a manual one as a backup. One of the older nurses could show you how to use that with your cell phone timer or watch and a stethoscope. Just remember that it is usually the machine – mine fails 90% of the time and I end up using a pediatric cuff on my forearm. My long winded point – talk to the nurses – given Hana’s IV locations and her temporary ports the leg might be better for the next few months.

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