I know so many of you are thinking of Hana. We appreciate it so much!
After a long night and a grim day at the new UCSF hospital, Hana was taken by helicopter to Stanford Medical Center’s Lucile Packard’s Children’s Hospital last night. They were prepared for our arrival with a machine they could surgically install to bypass her lungs and heart. Fortunately, she started to do better and they didn’t need to do this.
In the morning she was doing much better and they decided to start reducing some medications to see how she handled it. The first medication they took her off of was the one that was keeping her paralyzed. Meanwhile, Paul and I and often both my parents, talked to a dozen doctor’s, a social worker who handles pediatric transplant cases, the pediatric heart transplant coordinator, some child life psychiatrists, and the VAD coordinator (in case they need to give her a heart pump until she gets a heart donor).
She woke and opened her eyes!!! We talked to her and I read her a story. Then she had to get a PICC line inserted, so we decided to go to the Stanford Shopping Center to buy clothes (I’ve been wearing the same clothes for three days).
She is such an amazing, sweet trooper! Thanks for all your thoughts and well wishes and prayers and help! I can’t believe how amazing people have been.
More to come.