They decided to discharge Hana tomorrow. We are so excited (I wish it were today, but I don’t need to be in a hurry!). It will be great to be in a more comfortable place where we can all get more sleep.
Today she will get most of her six-month immunizations. Tomorrow, right before we are discharged they will give Hana two live vaccines that are not typically given to six-month olds. One is MMR (measles, mumps, rubella) which is usually given after a child is over a year old. If Hana gets a heart transplant, she will not be able to be given this vaccine, so they are trying to get her at least some protection by giving it early. The other live vaccine she will be given is Synagis which protects against respiratory syncytial virus (RSV). This vaccine is only given in special cases, such as children with congenital heart problems. They have to feel very confident about Hana’s condition before giving live vaccines because she can not get a heart transplant for one month after getting a live vaccine. One vaccine she is not getting is rotavirus because it can not be given with the MMR vaccine. They will wait a month and see how Hana is doing before assessing whether they can then give this live vaccine.
Hana has been making progress taking a bottle. Sometimes she is too sleepy to drink, but I’m hoping once we are home and she is able to get more sleep, it will be easier. Otherwise, I will give her feedings (and medications) through her NG tube. Yesterday I got to put in the NG tube (into her nose and down her throat, into her stomach) and, as long as someone can hold her, it was easy!