Discharge Tomorrow

They decided to discharge Hana tomorrow. We are so excited (I wish it were today, but I don’t need to be in a hurry!). It will be great to be in a more comfortable place where we can all get more sleep.

Today she will get most of her six-month immunizations. Tomorrow, right before we are discharged they will give Hana two live vaccines that are not typically given to six-month olds. One is MMR (measles, mumps, rubella) which is usually given after a child is over a year old. If Hana gets a heart transplant, she will not be able to be given this vaccine, so they are trying to get her at least some protection by giving it early. The other live vaccine she will be given is Synagis which protects against respiratory syncytial virus (RSV). This vaccine is only given in special cases, such as children with congenital heart problems. They have to feel very confident about Hana’s condition before giving live vaccines because she can not get a heart transplant for one month after getting a live vaccine. One vaccine she is not getting is rotavirus because it can not be given with the MMR vaccine. They will wait a month and see how Hana is doing before assessing whether they can then give this live vaccine.

Hana has been making progress taking a bottle. Sometimes she is too sleepy to drink, but I’m hoping once we are home and she is able to get more sleep, it will be easier. Otherwise, I will give her feedings (and medications) through her NG tube. Yesterday I got to put in the NG tube (into her nose and down her throat, into her stomach) and, as long as someone can hold her, it was easy!



14 thoughts on “Discharge Tomorrow

  1. πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™πŸ™……… Continue to be answered!!!!! Oh so thankful!

    Liked by 2 people

  2. Love this news! I’m not surprised that you found the ng tube easy…daughter of a nurse and you have been though so much already. Much love to all of you!

    Liked by 2 people

  3. Dear Paul and Katherine: I finally got caught up on the Blog posts, just in time to learn that you are going to get to go home with Hana tomorrow. I don’t really know what I want to say……but I just want you to know that I have been thinking of you these many weeks and hoping for the best possible outcomes….whatever those might be, and sending you my love.

    Liked by 1 person

  4. Hello Kathleen and Paul!
    I know you don’t know me personally but I feel like I know y’all BC of your Mom, Marie. I work with your Mom and am Also a good friend of hers. She talks bout you guys all the time. You have a beautiful family and I feel like I personally know you BC of her heartfelt comments about y’all. I have been following your family’s journey since Marie called me to tell me that first night. Hana is living proof that prayer works. And, we will continue to pray for God to keep Hana and y’all in his loving and comforting arms. I don’t know if your Mom shared with you or not but at the same time that Hana went into hospital my Niece, Nilah , also was in Hosp with bacterial menegitis. And it was not looking good. But, jus like Hana she is on the mend also. But, looks like Hana mite beat us home, tho.πŸ˜€πŸ˜€πŸ˜€
    So, I jus wanted to introduce myself and let you know that we also was going thru a journey and understood what your journey was like Tooo. I will continue to keep Hana in my prayers and thoughts. God Bless😍
    Nurse Kisha Brown

    Liked by 1 person

    1. πŸ™πŸ™πŸ™ yes they do work!!! Prayers for Nilah to recover fully and quickly!

      For where two or three are gathered
      Together in My name,
      I am in the midst of them.

      Matthew 18:20

      God Bless


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