Lots of people, many of them doctors, stopped to say how great Hana was doing. It feels good to hear this. Hana has been quiet and occasionally awake for a few moments. It does seem like being in her room too much kind of wakes her up or agitates her yet, you want to be there to comfort her when she does wake. It’s hard to find a balance.
I’m slowly learning more and more about the new world of the Berlin Heart. I know I said I would share more details but I am so exhausted and I think the past three weeks are catching up to me. I will share some pictures that I and others have taken.
Hana has a lot going in and out of her body. Besides her breathing tube, she has some kind of NG tube for venting her stomach, 2 IVs, 2 arterial lines, a PICC line, a central line in her neck, a Foley catheter, 3 chest tubes and 2 cannulas for the Berlin Heart. All of these will go away, eventually, except the Berlin heart cannulas and she will probably keep her NG feeding tube until after transplant.