Today Hana had more OT and PT, which they do simultaneously . She sat up with support and reached for toys. I missed it, but apparently she tried to stand up too!
They put on a 1/4 of a clonidine patch so that they can start weaning her off the precedex tomorrow. This is the last drip to wean. Hana was also switched to regular nasal cannula on 2L and she rubs it out of her nose and her O2 level stays at 100% so I think she is ready to breathe on her own. Then we can move to the step down unit. They are thinking early next week, as long as there is a bed available. Hana should get her own room, if one is available because she is active on the transplant list. Oh, they also took her arterial line out, which they tried to save so they don’t have to draw blood from her PICC line, but the art line stopped working. So now Hana no longer has an arm board on her left arm which means use of both arms and hands!
Hana is getting bored. She doesn’t want to watch tv shows or sing songs or play with toys- what she wants is to get out of bed. She also wants to drink. That should happen tomorrow!
Today is Day 2 on the transplant list. I decided to chronicle her wait time with photographs on this page.
Hana's Heart 
What a snuggly, sweet picture!
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HOW WONDERFUL TO HEAR SUCH GREAT NEWS AND PROGRESS !! WHAT A FIGHTER THIS LITTLE GIRL IS! HANG IN THERE HANNA, WE PRAY YOUR MIRACLE COMES REAL SOON. MARILYN AND FLOYD FORMAN
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We are friends with Katie Kennedy and somehow see your posts though we have never met. I’m confessing to an eves dropping of sorts but I’m writing now to tell you that you are In our thoughts. We are rooting for all of you.
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Keep your hands on Hana Dear Jesus🙏🏻
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Keep your hands on Hana Dear Jesus🙏🏻so happy for for all✨
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Oh Hana… You are doing so well. Such good news. Sending good positive energy to all of you there, from Oregon.
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So good to hear that she is bored (!) and ready for some action. She is quite a strong girl! Hope you all have a a good night.
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Kat and Paul. She looks so peaceful. Wow! She has come so far in such a short time. So delighted to read this update this morning out here on the East coast. Her little face is sweet, love her. I will continue to pray for you all as Hana continues to fight each day until she is well again.
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So good to see my cute little cousin sleeping so peacefully. And good to hear she wants to be more active so soon after what she’s been through last week. Goes to show all the prayers from now 32 states, DC and 3 other countries sure did work and will continue to work through the rest of her journey.
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God bless this ittle warrior… Keeping her & you in my thoughts and.prayers!
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She is beautiful! I am so happy for your family! I love that you are chronicling her wait on the t-plant list. This will be a beautiful memory when she is a thriving little girl next year!
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