Best Day Yet

Today Hana made a lot of progress. She’s been up and walking more, she’s less clingy and less cranky. We all got better sleep last night. Today, though, she would only nap in my arms. I think she may be afraid that I might leave while she’s napping (she’s right). But at least she napped longer, maybe 45 minutes.

We did the last of our transplant teaching today. It seems the only thing we are waiting for now is Hana’s first biopsy, which is some time on Thursday. If those results come back okay then we MAY get to be discharged to the Ronald McDonald House over the weekend. I can’t even believe it! I’m trying to wrap my mind around the idea of being on the “outside” again with Hana. Today I ordered a car seat from Amazon! 

Hana did a LOT of walking today. She got the okay to be off the portable monitor so now we can pretty much take her wherever we want in the hospital, including out front and the atrium. We spent a lot of time outside. Hana was content to sit back and let me pull her in the wagon through all these places she’s never been (or at least not for a long time, before being admitted). But then she wanted to walk and roam. We need to get her some sun protective clothing because she will be VERY sensitive to sunlight. 

Her nurse was able to accompany us back to the water fountain at the adult hospital. Hana really, really wanted to get in the water! She walked all around and I spent my time keeping her out of the water. It was great! I can’t believe how much more stable she is today than yesterday! It’s been amazing!

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11 thoughts on “Best Day Yet

  1. What a road you’ve been on. So grateful to follow Hana’s story and all the good things on the horizon.
    May all the blessings continue and may you continue to find redemption in this amazing journey.

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  2. Hey, wait a minute!! She’s moving better than I am!! I can’t get going that fast yet. She’s doing great. Go Hana!

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  3. A celebration of this beautiful lifeπŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»β™₯️β™₯οΈπŸ˜˜πŸ™πŸ»

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  4. The video was amazing to watch! She was walking so well! Thankfully to read of a better night of sleep. I’m sure leaving the hospital brings mixed feelings. Continued thoughts and prayers!

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  5. There is so much joy and gratitude in these recent posts and photos. I am so happy for all of you. Continuing to send our healing vibes your way.

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  6. Ms Hana Heart under cover from the paparazzi. So happy for the news. Thank you for adding joy and light to our days as well.

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  7. Like many others who have commented, I do not know you personally, but am amazed by your strength and ability to so eloquently share your story with so many people, especially with all you are going through every minute of every day. Hana, along with you and your family, have made me look at the world in a different way. You are tremendous parents and she is one superstar girl. Thank you for sharing your story.

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  8. Oh my. I just got myself all weepy looking back to one of your early pictures of Hana on the waiting list. Around Christmas you are holding her and there are wires and tubes everywhere. And then I look at these pictures and it is truly amazing how far you all have come together. Fingers crossed that the road ahead is much less treacherous than the one you have already traveled and every bit as love-filled!

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