Today we were supposed to return from our trip to Hawaii. We were scheduled to leave on Friday the 13th. Today they are continuing the Enalapril (the drug I couldn’t remember from yesterday) twice a day. She seems to handling it better than yesterday. They are decreasing her Milrinone and weaning more her nasal cannula. She is still getting Ativan for her agitation. They stopped the Heparin and started aspirin and iron. She is still getting Lasix and Aldactone. The goal is still to get her on oral medications. They even talked about moving her to the regular hospital floor as early as the end of the week.
It feels positive. Do I dare get my hopes up for a full recovery? Is this going to end up no big deal? Did I sound the alarm too soon? I know the answer is “NO!” But part of me doubts. “Never cry wolf!” has been a secret life motto for me, even when there is a wolf. I try to take on the wolf alone, it often doesn’t occur to me to ask for help, but sometimes it is also my pride, because I think I am stronger if I can do it by myself. Maybe that is true sometimes. One thing all of this has taught me is that there can be strength in numbers too. All of you – the people reading this, texting, calling, emailing, thinking, praying, meditating, has given me strength. It has given us all strength. The course of all of this is still unknown and, more relevant, the state of things almost two weeks ago was very, very bad. That was the wolf. What is his fate?
Here is Hana playing today:
Hana's Heart 
Hana is so sweet! We are keeping her and her entire family in our thoughts and prayers.
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Thank you for letting me visit on Monday. It is clear that Hana is surrounded by love. You, Paul, and your Mom are just incredible! Lots of love,
Your cousin Susan
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Love that beautiful little face!! So glad she’s having a good day. I say you three will be in Hawaii on the beach this time next year:)!
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I was really excited to see hana in “action”. So happy for all of you. Such a great day – smile and then finally a video. She seemed so intrigued and curious.
Big hug and wishing you quick recovery and release from the hospital! Visualize, visualize, visualize. yes, you can and yes, you ll!!!
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It is no coincidence, Katie was assigned the poem “The Boy and the Wolf” in her literature class today!!! She read it and we discussed it after school today at 3:45. I am now seeing this at 10:30.
We are all synced with you!!! We are strong in numbers and prayers🙏👭👪👬👫🙏
Love seeing her play….more please😊
Keep caring for yourselves and each other… Love
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It is ok to hope…
Peace and Hope
Romans 5:1-5
Therefore, since we have been justified through faith, we have peace with God through our Lord Jesus Christ, through whom we have gained access by faith into this grace in which we now stand. And we boast in the hope of the glory of God. Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.
love you all!
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It is great to see Hana play and be a baby.
Kathleen – that wolf WAS there big time! If I ever saw one. Don’t feel bad about seeking help. All of us wish we were living close by to help you further.
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Wonderful to see your darling baby girl sitting up and playing a bit. Children seem to have such resilience, even in the face of all that her little body has gone through. Thanks for the video!
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How wonderful to see Hana sitting up & playing!
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