It was two weeks ago today that all of this started. I haven’t been home since going back to the pediatrician’s office. If you had gone to my house you would have walked into the middle of my day, my “life”. All of it interrupted so suddenly. It’s amazing the things you can let go of, and quickly too, when you really need to. So, why can’t we be more like that more of the time? But I had collected a clutter of grudges, worries, obsessions, concerns, material things. Some of these things are just on hold until this time in my life passes, but some of them are better left forgotten.
Hana is having a great day. She no longer has the nasal cannula. She’s off the Milrinone and dopamine. They might take her arterial line out today. She could, in theory, go onto the hospital floor, but they still want to get her Enalapril dose up without her blood pressure dropping so much. They are talking about moving her tomorrow! She is kicking and trying to sit up. She’s being stubborn about naps. She is about the same as two weeks ago except that she no longer has a cough (well, she is also getting all her meds and food through her feeding tube)! One thing that hasn’t changed is her heart. They did an echocardiogram yesterday and it showed no change from two weeks ago. Her heart is still enlarged. That’s good in that she is not getting worse, but it would be nice to see improvement, of course.
They lifted the isolation restrictions around lunchtime so we no longer have to wear gowns, gloves and masks!