It’s been a busy day. Hana didn’t sleep well last night, so I didn’t sleep well. Actually, I barely slept! Then rounds came and we were the first patient they saw (I was still getting dressed for the day). Today, they decreased her Ativan again and took her off of Sodium. They increased the amount of calories fortifying her breastmilk. They decided to do bottle feeds of 120mL every three hours. If she doesn’t take it all then she gets the rest through her NG tube. I am allowed to try breastfeeding twice a day. They are going to try to fast track her immunizations since people who get organ transplants can not get immunizations for certain things. In the end, they said she could go home in the next 24 to 48 hours! I can hardly believe it!
After rounds, Hana had a chest x-Ray. Then they took her PICC line out. Then they did another echocardiogram. They’ve been teaching me how to administer her medications, how to put her NG tube in (only in a mannequin so far) how to fortify the breastmilk she gets. I had to get medical releases signed for various things. The social worker came by and the parent mentor. It’s been so busy!
I’m trying to wrap my mind around the fact that we are going home soon!!!!