It was a month ago, Christmas Eve, that Hana was transferred to 3 West from the CVICU. She turned 17-months this past week. Things are moving along. The IVIG therapy was relatively uneventful other than a teething, very fussy, very bored 17-month old had to stay still for 24 hours. That’s kind of hard and requires marathon patience. She did throw up a lot. I think our day nurse felt bad for me but it was okay. Part of what made it okay was I knew that on Saturday night we were going home to sleep (and see Poppy). Although the night the IVIG was running I got pretty good sleep and probably only had to get up six times.
Now we are trying to figure out the sleep/vomit thing. Hana’s sleep is often disrupted and she is puking a lot. Now we try to balance fluid volume/calories/meds so she doesn’t vomit and checking vitals/taking her weight/checking the Berlin with letting Hana get sleep.
It was amazing to be at home and see Poppy. It’s always a little sad – like when I see Hana’s raincoat I bought her two days before being admitted to the hospital and knowing she most likely will never get to wear it (at least not outside in the rain).
7 thoughts on “One Month On 3 West”
Beautiful pictures !
It if weren’t for all those tubes, you would never know that Hana is a very sick little girl. Do try to get more sleep and take care of yourself as best you can. You are something else—and I mean that in the most positive way.
I am going to send over a stuffed toy and book. Do you want me to wash the toy in Dreft Baby Detergent before I send it over?
I love reading Hana’s updates, and I’m so glad she’s doing well. I randomly came across your story, and Hana reminded so much of my son who is almost exactly the same age. I am sending you prayers all the time, and I am so impressed with Hana’s strength and resilience. I’m so impressed with you as well. Go Mama! Doing whatever it takes!
It’s wonderful to read you had a chance to step away from the hospital for rest and relax (hopefully). I’m sure it is not an easy thing to do.
Hana truly looks so happy-you are doing a great job!!
I pray for you always and hope I can be as patient with my grandchildren as you are. Hana is precious and I am sure God will take care of her because of your hard work and love for your sweet child.
Hana looks like she feels better and has such a sweet happy smile. I love seeing her arms moving about free of IVs. You and Paul are at the centerpiece of our prayers.