It was a month ago, Christmas Eve, that Hana was transferred to 3 West from the CVICU. She turned 17-months this past week. Things are moving along. The IVIG therapy was relatively uneventful other than a teething, very fussy, very bored 17-month old had to stay still for 24 hours. That’s kind of hard and requires marathon patience. She did throw up a lot. I think our day nurse felt bad for me but it was okay. Part of what made it okay was I knew that on Saturday night we were going home to sleep (and see Poppy). Although the night the IVIG was running I got pretty good sleep and probably only had to get up six times.
Now we are trying to figure out the sleep/vomit thing. Hana’s sleep is often disrupted and she is puking a lot. Now we try to balance fluid volume/calories/meds so she doesn’t vomit and checking vitals/taking her weight/checking the Berlin with letting Hana get sleep.
It was amazing to be at home and see Poppy. It’s always a little sad – like when I see Hana’s raincoat I bought her two days before being admitted to the hospital and knowing she most likely will never get to wear it (at least not outside in the rain).